Today started of with the usual walk to the Park with the dogs. Then Sophie and I went wellington boot shopping , with no luck..
Dad picked me up at 1.30 for Art. The class started at 2, but we were there early for dad to set up the tables. I thought 2 1/2 hours of art might be boring, how wrong I was, there was not enough time!!
I sat between dad and his friend and they both gave me plenty of help, we painted a picture of mainly sky ,Sounds boring, but not boring at all and very hard to describe, but it was so interesting. The teacher also explained things very well. I have to finish it at home and I look forward to doing that. I am also looking forward to going next week. life may be changing but I am going to embrace the change as this is the new normal, as John puts it, doing retirement things early!!!
Off out for a meal with Elaine and Emma, fingers crossed the sickness does not get any worse, but the sickness is getting better. Well I did have to come home early, not the sickness, but a spinning head !!!. I did not have a sleep today, so it may be that or it is the first meal out in along time!
Tuesday, 31 January 2017
Monday, 30 January 2017
Penny Bohn with Mum
Today mum and I went to Penny Brohn, a fantastic place that deals with the mind, body and soul.
But before I tell you about the morning I will tell you about the journey there. It is mean't to take 19 min, while it took 1 hour, we got lost. I have no sense of direction and mum said she knew where she was going, it said take the second turning off the motorway, we took 4 th then 5th but not second, then we ask directions and amazingly we get there.
The morning starts with a herbal tea, then we go into a lovely room and have a chat by a doctor on what the centre provides, then after that a armchair keep fit class, which was very good fun. All you needed to know was your left and right. I do not know my left from my right, neither did the lady next to me which caused a lot of laughter and we did laugh. Relaxation followed and that was brilliant. This was followed by acupuncture, again very good, I think I fell asleep. Then a chat with the chemo nurse. Mum and I stayed for lunch which was very tasty. The morning was brilliant and I was glad I went with mum as it made it fun. I know the place is all about relaxation and it did that for both of us, but it also made me feel good. Just to let you know we didn't get lost on the way home, we went to Bristol instead of the M5 , but this time we knew we had gone wrong so all we had to do was turn around ..... We got home in the end !!!!
When I got home Judith popped in with Slinky for a play, then in the evening I went walking, an extra lap tonight.
But before I tell you about the morning I will tell you about the journey there. It is mean't to take 19 min, while it took 1 hour, we got lost. I have no sense of direction and mum said she knew where she was going, it said take the second turning off the motorway, we took 4 th then 5th but not second, then we ask directions and amazingly we get there.
The morning starts with a herbal tea, then we go into a lovely room and have a chat by a doctor on what the centre provides, then after that a armchair keep fit class, which was very good fun. All you needed to know was your left and right. I do not know my left from my right, neither did the lady next to me which caused a lot of laughter and we did laugh. Relaxation followed and that was brilliant. This was followed by acupuncture, again very good, I think I fell asleep. Then a chat with the chemo nurse. Mum and I stayed for lunch which was very tasty. The morning was brilliant and I was glad I went with mum as it made it fun. I know the place is all about relaxation and it did that for both of us, but it also made me feel good. Just to let you know we didn't get lost on the way home, we went to Bristol instead of the M5 , but this time we knew we had gone wrong so all we had to do was turn around ..... We got home in the end !!!!
When I got home Judith popped in with Slinky for a play, then in the evening I went walking, an extra lap tonight.
Sunday, 29 January 2017
Cooking Sunday Lunch
This is the Sunday Lunch I have cooked since I went into A nd E with a headache, at that time little did I know what was to follow!!!
With Jack parents over I was determined to cook roast and with the help of John and Sophie we managed it and it felt great cooking again. I did need a nap about 11 as still very tired. But we did cook a roast and an apple crumble to following, plus a cake Sophie made yesterday. I am passionate about baking , Sophie loves to bake to so it is a good thing to do together.
Tom and Lyn enjoyed the lunch and a cup of tea afterwards, then they had to catch a plane back.
We are going over there half term and during the meal the trip was planned Something to look forward too.
After they left Sophie and I visited mum for a hair cut, I say that in loose terms, she tidied up my hair, not the best person at the moment to have a hair cut as every time she went near the sensitive area they was a few oo.s and ah.s. We got there in the end!!
Back home Elaine popped in for a catch up. When she left the sickness set in. so another evening on Sophie's bed watching TV.
With Jack parents over I was determined to cook roast and with the help of John and Sophie we managed it and it felt great cooking again. I did need a nap about 11 as still very tired. But we did cook a roast and an apple crumble to following, plus a cake Sophie made yesterday. I am passionate about baking , Sophie loves to bake to so it is a good thing to do together.
Tom and Lyn enjoyed the lunch and a cup of tea afterwards, then they had to catch a plane back.
We are going over there half term and during the meal the trip was planned Something to look forward too.
After they left Sophie and I visited mum for a hair cut, I say that in loose terms, she tidied up my hair, not the best person at the moment to have a hair cut as every time she went near the sensitive area they was a few oo.s and ah.s. We got there in the end!!
Back home Elaine popped in for a catch up. When she left the sickness set in. so another evening on Sophie's bed watching TV.
Saturday, 28 January 2017
A busy day
The day starts with breakfast in bed, due to the sickness John as been a saint and brings me toast and tea, this generally takes the edge of the sickness. When I question if I shall walk, he tells me to go as I will enjoy it !! I do walk with mum and Celia and I do enjoy it.
Back Home and Sally come in with Lynn, Jack mum from Ireland, they are over on a break, later Jack and his dad Tom arrives. It is great to see them. Feeling very tired I do have to go for a sleep while they are here. My head still does not feel right , bit fuzzy and before comments a written what is different. Paul, Alex, Izzy and Daniel pop up for a catch, John had arranged this and it was brilliant.
A day being spoiled by Sophie and John, as they cooked dinner.
Sophie had typed up the blog as I was about to throw the laptop onto the floor, as everything I was typing up, it was coming back to front. I nearly didn't write the blog and Sophie offered to do it.
Spending the evening watching TV in Sophie bed with Bertie
Back Home and Sally come in with Lynn, Jack mum from Ireland, they are over on a break, later Jack and his dad Tom arrives. It is great to see them. Feeling very tired I do have to go for a sleep while they are here. My head still does not feel right , bit fuzzy and before comments a written what is different. Paul, Alex, Izzy and Daniel pop up for a catch, John had arranged this and it was brilliant.
A day being spoiled by Sophie and John, as they cooked dinner.
Sophie had typed up the blog as I was about to throw the laptop onto the floor, as everything I was typing up, it was coming back to front. I nearly didn't write the blog and Sophie offered to do it.
Spending the evening watching TV in Sophie bed with Bertie
Friday, 27 January 2017
a better day
Today Janet gave me a lift to the leisure centre to meet Cathy for coffee. Richard and Sally had also been swimming. Not really that jealous!!!!
Anyway we all went for a coffee and tea cakes in Thornbury , it was very good. We came home and Poppy came round to puppy play with Bertie, that went well too.
It is my first day without an anti sickness tablet so from about 2 ish I have been feeling sick, even with eating plenty of ginger.. So I will stop blogging now as I feel very sick, laying in bed with Bertie, but I am so determined not to take the pill as it does have side effects which even I can not blogg about......
Just to say do not know how I would cope with my Bertie, he never leaves my side and know when I not well.
Anyway we all went for a coffee and tea cakes in Thornbury , it was very good. We came home and Poppy came round to puppy play with Bertie, that went well too.
It is my first day without an anti sickness tablet so from about 2 ish I have been feeling sick, even with eating plenty of ginger.. So I will stop blogging now as I feel very sick, laying in bed with Bertie, but I am so determined not to take the pill as it does have side effects which even I can not blogg about......
Just to say do not know how I would cope with my Bertie, he never leaves my side and know when I not well.
Thursday, 26 January 2017
A hard day
I say that because it has been, emotionally I mean. I had a lovely walk this morning with Janet, mum and Heather. When I got back a quick cup of tea with mum, then a rest.
Sally and I went shopping before counselling which was good. Counselling is very good, but it brings up many issues that you need to address and want to address, it leaves you feeling raw..
I also went out with the tri club, it ended up Ben and Liz in the end and we really chatted, for some reason I really opened up and they said to put down in writing how I really feel. So here goes...
When you are told you have a brain tumour you are in shock, then when you are told it cancerous you are in disbelief , then you have to somehow get your head around it all. What I have found hard is the sympathy I am given. I know that people mean well, and I do like it and it is hard for people to know what to say to me, but somewhere along the line I have felt my identity has gone. Before tumour I was working, training for a tri and swimming all the time, however, now I have a brain tumour which means I can not drive, swim, work and this makes me feel rubbish. I like control and I feel so out of control . I do not know how the next lot of chemo will make me feel and I just hope and pray the treatment is working. I dread the next scan and will not open any letters in case the date for the scan is on it. I will also not open any mail with my name on in case it is bad news again. I hate seeing the effect the illness has on my family and friends. It is hard knowing you are hurting the people you love and there is nothing you can do about it!! I try so hard to stay positive but it is so hard at times.
But what I do enjoy is being out with Liz , Ben, Marcus and Andrew and talking about there next tri events. I enjoy telling them what I hope to do. I love talking about my bike.
I enjoy walking the dogs and talking about dogs. I love walking with Celia, Mum and Elaine, I love baking and talking about food. I love reading e mails, especially Cathy's when she talks about college and what she is up to. I love hearing about what people are up to and there everyday lives.
Sally and I went shopping before counselling which was good. Counselling is very good, but it brings up many issues that you need to address and want to address, it leaves you feeling raw..
I also went out with the tri club, it ended up Ben and Liz in the end and we really chatted, for some reason I really opened up and they said to put down in writing how I really feel. So here goes...
When you are told you have a brain tumour you are in shock, then when you are told it cancerous you are in disbelief , then you have to somehow get your head around it all. What I have found hard is the sympathy I am given. I know that people mean well, and I do like it and it is hard for people to know what to say to me, but somewhere along the line I have felt my identity has gone. Before tumour I was working, training for a tri and swimming all the time, however, now I have a brain tumour which means I can not drive, swim, work and this makes me feel rubbish. I like control and I feel so out of control . I do not know how the next lot of chemo will make me feel and I just hope and pray the treatment is working. I dread the next scan and will not open any letters in case the date for the scan is on it. I will also not open any mail with my name on in case it is bad news again. I hate seeing the effect the illness has on my family and friends. It is hard knowing you are hurting the people you love and there is nothing you can do about it!! I try so hard to stay positive but it is so hard at times.
But what I do enjoy is being out with Liz , Ben, Marcus and Andrew and talking about there next tri events. I enjoy telling them what I hope to do. I love talking about my bike.
I enjoy walking the dogs and talking about dogs. I love walking with Celia, Mum and Elaine, I love baking and talking about food. I love reading e mails, especially Cathy's when she talks about college and what she is up to. I love hearing about what people are up to and there everyday lives.
Wednesday, 25 January 2017
Another Chapter
This morning it did feel weird waking up knowing I was not going into hospital, but the feeling of sick , or shall I say very sick has not gone away. I walked the dogs with Emma today and I can safely say it the sickness did not go, but I did walk, John almost pushed me out of the door. After the walk Megan and big bump from work came and we went out, first to Glebe to see everyone, I nearly did not walk through the door as facing people is hard, but I did walk in and I was glad, it was good to speak to everyone and met the newish activity lady Wendy and she is great, it was also good to talk to Carey my boss. I will not be back at work for a while as I have a month of from treatment then I have to see how I react to the first month of chemo, 6 months in total. My whole world feels very uncertain at the moment. After Glebe Megan and I went to the Garden centre for lunch, then home.
I did go to Aldi, step to far, as Sally said I was not with it and she was right, back home for a sleep...
Feeling groggy now, hoped I would feel better than I do, they said I would not, but I hoped I would be different, I live in hope...
Would like to say I am partying the night away, but I am actually sat on the sofa with Bertie , feeling sick and Watching TV.
I did go to Aldi, step to far, as Sally said I was not with it and she was right, back home for a sleep...
Feeling groggy now, hoped I would feel better than I do, they said I would not, but I hoped I would be different, I live in hope...
Would like to say I am partying the night away, but I am actually sat on the sofa with Bertie , feeling sick and Watching TV.
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