We are now embracing the St Peters Hospice. They sort out my pain control and they are going to give us all some counselling. The nurse is really nice and I feel ready to embrace the journey ahead. The journey we have ahead will not be easy but it will be done as a family every step of the way.
As for me, my favourite bit is going out in my wheelchair and car. I am getting braver each day and going more places. I want to go to more place. I get nervous before I go out as the wheelchair is big, I am worried about being looked at but the more you do the easier it gets. We had some great fun at supermarket as I can't reach for anything but I have really good go first and we have plenty of laughs at what I want to get. I am trying not to be down but aiming to be positive but it is very hard. I tend to sleep a lot in the evenings which I hate, but have been told that the brain tumour makes you sleepy and they say that its normal. Determined to make Christmas. Sophie, Sally and I are loving spending money
Must add that when anybody walks into the house they will see pringles that will be offered to them because I eat them at breakfast, tablets, tea and throughout the day. plus enjoying chocolate they have tasted too.
Sophie has helped me to typed the blog today
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